An international , all volunteer, non profit organisation that provides educational and networking services online and offline;raises public awareness of erythromelalgia and helps fund research into this rare disorder. Founded in 1999, TEA is funded entirely by donations and is a member of the National Organisation of Rare Disorders.
Dr Cohen developed severe EM in 1995, yet he is now relatively pain free and active. This link takes you to his website and various articles.
A Mayo Clinic video on EM symptoms and treatments
Information on EM for Spanish speakers
Information on erythromelalgia
Connecting rare disease patients globally