Are you frustrated, fed up and flaring over the struggle to get your voice heard ( and believed)?
Do you wish you could do something to raise awareness and greater understanding of erythromelalgia?
Well, continue reading this post because Spotlight on Erythromelalgia:An Awareness Project 2017/8 needs contributors like you!
We need as many of you as possible to send us a short video clip (approx 5 minutes) where you talk about the following:
1. How your EM started.
2. Describe your EM symptoms.
3. How EM affects your life.
4. Finish the following metaphor: 'My erythromelalgia is like...'
NB: If you find filming yourself too uncomfortable then please send us a voice clip instead.
- Please be succinct.
- Please try to be as descriptive as possible.
- Please film/record using a white background so our editing looks seamless.
This is a superexciting project that intends to create one unique documentary-style awareness video of what it is like to have EM, wherever you are in the world.
We will be accepting video clips until December 31st 2017
(Please contact us if you need more time - we understand that most of us find it impossible to plan/schedule things)
SEND YOUR RECORDINGS TO US:
- Please attach your video and/or voice clips to an email and send it to firstname.lastname@example.org.
-Larger files or MP3's routinely upload to Google drive so send us the email with the link and we will download that way.
-Use https://wetransfer.com/ ( It is free and easy programme)
If you need any help with recording, attaching your clips to email or sending them ,please contact us.
We truly could not continue to raise awareness or create a greater understanding of erythromelalgia without your participation or your support, so we hope that as many of you as possible get involved in this thrilling collaboration.
RAISING AWARENESS Of ERYTHROMELALGIA, ONE STEP AT A TIME!