Welcome To EM Warriors

Welcome! 

Please click the 'my page' tab  to sign up/sign in. 

Getting involved

  • Click on 'my page' to register for free membership and full access to the website
  • Invite contacts and make friends
  • Download the EM warrior toolkit
  • Post in our discussion forum 
  • Read or write a blog
  • Join or create a group
  • Use our extensive resources and research archives
  • Share your EM pics and videos
  • Get on our soap box - let off steam!
  • Plus much more

Getting informed

  • Check our terms of service
  • Check our privacy policy
  • Read our about section

Getting site support 

Erythromelalgia Facts

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EM Warriors Partner With The Mighty

EM Warriors Are Partnering With The Mighty!

We're thrilled to announce a new partnership that will bring our resources in front of The Mighty's wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site.

The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.

We're dedicated to helping people with erythromelalgia in their lives. With this partnership, we'll be able to help even more people.


We encourage you to submit a story to The Mighty and make the voice of an erythromelalgia sufferer heard.

"Here's an example of the kind of stories on The Mighty: To the Person Who Thinks My Fibromyalgia Isn't Real"


Other story options: 

 Do you want to tell your story but don't know where to begin? Contact us at erythromelalgiawarriorsnetwork@gmail.com and we will help you get your story down and published. 

I Am The Face Of Erythromelalgia Campaign

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The Faces Firefeet Mosaic by EM Warriors



Photo mosaic by: emwarriors @ Mosaically

What Is Erythromelalgia?

Read more

Today's News Highlights

Erythromelalgia Warriors: Patient Support & Information Network via Facebook

Urinary incontinence causes: These five leaking triggers are all avoidable…

Erythromelalgia Warriors: Patient Support & Information Network via Facebook

‘Every time it’s a battle’: In excruciating pain, sickle cell patients are…

Erythromelalgia Warriors: Patient Support & Information Network via Facebook

"I started to become self-conscious – something that I had never been…

Erythromelalgia Warriors: Patient Support & Information Network via Facebook

Read about the generic therapy maker Synthon winning a patent-infringement case that the…

Erythromelalgia Warriors: Patient Support & Information Network via Facebook

Data from government-funded research prompts fresh questions about effect of social media and…

Erythromelalgia Warriors: Patient Support & Information Network via Facebook

One hour of external trigeminal nerve stimulation relieved the pain of episodic or chronic…

Erythromelalgia Warriors: Patient Support & Information Network via Facebook

The FDA cleared Medtronic's latest spinal cord stimulation system for the treatment of…

More…

Living with erythromelalgia

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The Warriors Chant

 You are fierce               You are a survivor            You are a fighter through  and through                  You are brave              You are courageous            There is an EM warrior  within YOU!

 

Breaking News!

   July 2015

  • Xenon announces follow up to the primary genetic study, which will focus on facial EM. Xenon are currently inviting certain participants from the 2013 genetic study to take part in a survey on facial EM. Participants are being asked to fill in an online questionnaire and provide a saliva sample (if requested). This is fantastic move forward for the EM community!  :)

August 2015

  • FDA OK a new drug 'Finacea' for Papulopustular Rosacea.

October 2015

  • Xenon are still performing free worldwide genetic testing with saliva kit.

November 2015

  • 'Tonmya', a drug developed for the treatment of fibromyalgia, could be available end of 2016. For more information http://www.affirmstudy.com/

January 2016

  • EM transdermal 'Midodrine' developed by Mayo clinic available through compounding pharmacists.

February 2016

  • IMC-1 promising fibromyalgia drug fast tracked by FDA.

March 2016

  • New findings potentially provide several new drug targets - CSF1, CSF1 receptor, and DAP12 - that have huge therapeutic potential for neuropathic pain.
  • Drug candidate ZYN001 that delivers marijuana via skin patch soon to be developed for fibromyalgia.
  • Beiersdorf study shows licorice extract can help rosacea.
  • CDC release new guidelines for opioid prescribing for chronic pain.

April 2016

Privacy On Our Community

This is a members only 'closed' community, but please be aware that in order to raise much needed erythromelalgia awareness certain site content is searchable via the internet. If you are concerned about being Googled or Yahoo-ed then you can protect your anonymity by creating a unique username. 

See our Privacy policy for more information.

Note: On EM Warriors the privacy settings are set per page, so any page set to private will not be crawled by search engines.

Guidelines For Our Community

Please read our Terms of service

Crisis Hotlines

  • USA 1-800 7842433/1-8002738255
  • UK Samaritans 0845 790 90 90
  • Ireland Samaritans 01850 60 9090
  • Australia   1300 - 651251
  • Canada 1-866 996 0091/613-722 6914
  • Other international numbers please visit www.suicide.org/international-suicide-hotlines.html 

Disclaimer

The content of the EM Warriors website, including text, graphics, images, information obtained from licensors, and other material, is intended for informational and educational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment.

Please never disregard the advice of your physician or delay seeking it because of something you have read on this website.

Voices Of Strength

Sharing inspirational stories about living with invisible illness.

The Hotdesk

Bringing you the latest updates in chronic pain research.

Winter 2015/6

Spring 2015

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