Take flare and mottling (livedo) photos regularly. Get them printed properly(not photocopied) and filed in a folder or album Date them on back with comments. It is imperative that you keep a record of your flares. Not only will this help the diagnosis process , but it will assist the Dr decide what medications he/she should prescribe.
Remember its important that you keep a record of your pain and symptoms. Handing the consultant a record of your daily pain and photos of your flares will help with the diagnosis process. These are free worksheets to download and complete.
Download and keep a record of your pain and symptoms. Dont forget to take photos too! This is an important part of the preparation required when seeking a diagnosis.After diagnosis, this 'evidence' will help you secure medications to help you try to better manage your erythromelalgia or other pain.
Useful record to see if their is any relationship between your thoughts, emotions and pain flares.
Chronic pain often leads to a dilemma. As pain sufferers find that the usual daily activities affect them, they make the choice to protect themselves by doing less, resting, or to doing nothing. These choices make sense, but stopping all your normal activities can lead to anxiety and depression, which can in turn trigger flaring. Resting and long-term inactivity can result in muscle atrophy and stiff connective tissue making you more susceptible to injury.