WHO ARE THE EM WARRIORS?
The Erythromelalgia Warriors (The EM Warriors) is a dynamic international non-profit organisation dedicated to educating, encouraging and empowering all those living with or affected by erythromelalgia and its comorbidity.
Our website forms part of our volunteer-led support and information network, which provides invaluable free 24-hour online and outreach services worldwide.
OUR MISSION:
- To empower lives touched by erythromelalgia by facilitating the tools for self-advocacy.
- To advance up-to-date knowledge , raise awareness and educate through a strong social media presence, innovative online campaigns and range of erythromelalgia and erythromelalgia-related resources.
- To develop , print and distribute free information as part of our offline global erythromelalgia awareness program and schools project.
- To sponsor research and support independent projects through fundraising.
OUR VISION:
- A world where there is greater understanding of EM and where the hope of a cure becomes reality.
FOR INFORMATION ABOUT OUR SERVICES AND RESOURCES
SUPPORT SERVICES EMAIL
erythromelalgiawarriors@gmail.com
WEBSITE
SUPPORT CALLS
web.skype.com/en/live:erythromelalgiawarriors Don’t worry if you haven’t got Skype as we also give FB and landline calls. Just contact support services to arrange.
FACEBOOK ( public site ) www.facebook.com/ErythromelalgiaWarriors/
MESSENGER LINK
TWITTER www.twitter.com/EM_Warriors
COMMUNITY CHAT (private FB community )
COMMUNITY ART AND CRAFTS ( private FB group)
COMMUNITY PARENTS AND CHILDREN WITH EM (private FB group)
COMMUNITY PRAYER (private FB group)
OFFLINE NETWORK - Prefer to stay offline? We offer Skype and phone support plus a postal service for information requests.
INSTAGRAM
STOP THE BURN GLOBAL AWARENESS CAMPAIGN
We provide free erythromelalgia awareness materials worldwide . Help us fund this vital project, which is now in its 3rd year! We do ask you to help us with postl/packaging costs.
We provide free erythromelalgia awareness materials worldwide . Help us fund this vital project, which is now in its 3rd year! We do ask you to help us with postl/packaging costs.
STOP THE BURN EDUCATION PROJECT.
We provide leaflets and fact sheets to help educate schools, colleges and teachers. Accommodation fact sheets available for parents/students. We do ask you help us with post/packaging costs
We provide leaflets and fact sheets to help educate schools, colleges and teachers. Accommodation fact sheets available for parents/students. We do ask you help us with post/packaging costs
STOP THE BURN RESEARCH FUND
Please donate what you can to help us advance knowledge of this 1.100.000 rare neurovascular chronic pain syndrome by supporting independent research and carrying out in house research case studies and projects
Please donate what you can to help us advance knowledge of this 1.100.000 rare neurovascular chronic pain syndrome by supporting independent research and carrying out in house research case studies and projects
DONATION LINES Make a donation using Paypal or cards
DOCTORS DATABASE For doctors familiar with EM , please ask our awesome admin team or email support services at erythromelalgiawarriors@gmail.com stating your country, state/county.
EM AWARENESS PACK
Email our support services at erythromelalgiawarriors@gmail.com for details about our adult pack and our child pack. Cost $35 /£35 (includes postage/packaging)
Email our support services at erythromelalgiawarriors@gmail.com for details about our adult pack and our child pack. Cost $35 /£35 (includes postage/packaging)
THE LITTLE EM WARRIORS CLUB (under 18's) Ask us how your little EM warrior can sign up and receive their token goody bag .
PENPAL CLUB also available.
RESEARCH DATABASE For EM-related articles and the latest research. We also cover all secondary causal conditions and comorbidity. Please ask admin or email support services at erythromelalgiawarriors@gmail.com
AWARENESS CAMPAIGNS, EVENTS, FUNDRAISERS, RESEARCH, POLLS, FLASH COMPETITIONS Ask our admin team , check the announcement section on our different platforms, follow our FB events pages or message or email our support services.
AWARENESS PRODUCTS CATALOG We offer an extensive range of high quality t-shirts, hoodies, mugs, pens, caps, car magnets, bumper stickers and temporary tattoos . We also have eye-catching erythromelalgia , PEPD and Raynaud’s flyers, EM awareness bracelets, medical alert bracelets, badges , charity pins, Z brochure with detachable rare medical card card (to personalise and carry) and much more. Our brochure can be found in files with the price list. Alternatively, check out our main FB shop, ask admin or email support services. We have some great monthly offers for members!
YOU TUBE
http://www.youtube.com/channel/UC2wEr_UQxZkwcCewSl5t3CA Look for The Erythromelalgia Warriors and The EM Warriors
PINTEREST pinterest co uk /erythromelalgia
THE MIGHTY ERYTHROMELALGIA WARRIORS PAGE
SNAPCHAT https://www.snapchat.com Add our Snapcode em-warriors
ERYTHROMELALGIA FACTS VIDEO https://youtu.be/kdshcOI0Cos
FUNDRAISING
Could you do a fundraiser for us? How about a birthday fundraiser or sponsored swim? Contact erythromelalgiawarriors@gmail.com to discuss ideas and details . We even provide a fundraising pack and help you organise and promote your event.
BIRTHDAY FUNDRAISER
Why not celebrate your birthday with The Erythromelalgia Warriors by doing an online birthday fundraiser? We will gladly set up an awesome birthday fundraiser on your behalf and include photos, information and personalised thank you notes. We also help to promote your fundraiser across our extensive network. You even receive a small birthday surprise from us too 
Just ask admin or contact erythromelalgiawarriors@gmail.com
MEMBERS
Don’t forget to ask our awesome admin team or email our support services at erythromelalgiawarriors@gmail.com about the following:
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Our excellent EM information packs for adults and for children ( under 18 years) $35/ £35 - plus postage costs
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Doctors familiar with EM in your country and area
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Our quality EM awareness products ( brochure/price list available )
- Fundraising opportunities
- Our guide to diagnosis
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All your support and information needs. Our dedicated team of experts are here to help!
WEBSITE
We are in the process of upgrading our website and apologise for any inconvenience. Please use the messenger window(click blue circle) to speak to admin or email our team at erythromelalgiawarriors@gmail.com for help with any support or inform needs.
AWARENESS MONTH FUNDRAISER - MAY 2022
Help us by donating and fundraising during erythromelalgia month . An erythromelalgia awareness pin to be gifted for donations over $25/£25
DID YOU KNOW?
We rely solely on people's generosity in order to maintain our extensive organisation, produce, print and distribute awareness as well as educational resources; sponsor much needed research and advance knowledge of this 1:100.000 rare neurovascular chronic pain syndrome.
We desperately need donations and fundraisers to help us finance our ongoing global awareness campaign, stop the burn research fund and education/schools project for 2022.
Could you fundraise or make a donation to help us? We would be most grateful for any contribution, however small.
DONATIONS
Make a donation using Paypal or cards
We accept all currencies
Our QR code is available should you wish to scan a payment
A FINAL WORD
We are a positive, highly informative, solutions-focused organisation and not a place for negative ranting or anecdotal claims.
We take the welfare of our members very seriously indeed and monitor our community carefully in order to provide a safe, private space for all those living with erythromelalgia
PLEASE READ OUR TERMS/CONDITIONS.
