Who are The Erythromelalgia (EM) Warriors?
The EM Warriors are a dynamic international non-profit organisation dedicated to educating, encouraging and empowering all those living with or affected by erythromelalgia and its comorbidities.
A volunteer-led support and information network, we provide invaluable free 24-hour online and outreach services worldwide.
Our mission:
- To empower lives touched by erythromelalgia by facilitating the tools for self-advocacy
- To raise awareness and promote understanding of EM by developing innovative social media campaigns and producing educational resources.
- To advance knowledge by fundraising to support research and independent projects.
Our vision: a world where there is greater understanding of EM and where the hope of a cure becomes reality.
Links to all information and support services:
• SUPPORT SERVICES EMAIL: erythromelalgiawarriors@gmail.com or info@erythromelalgiawarriors.org
• CRISIS LINE/SUPPORT CALLS : web.skype.com/en/live:erythromelalgiawarriors
• FACEBOOK: www.facebook.com/ErythromelalgiaWarriors/
• TWITTER: www.twitter.com/EM_Warriors
• COMMUNITY CHAT (private FB group):
- COMMUNITY PRAYER https://www.facebook.com/groups/ErythromelalgiaCommunityPrayer/
- COMMUNITY ART & CRAFTS https://www.facebook.com/groups/ErythromelalgiaCommunityCrafts/
- INSTAGRAM https://www.instagram.com/erythromelalgiawarriors/
- NETWORK - Prefer to stay offline? We offer Skype and phone support plus a postal service for information requests.
- STOP THE BURN RESEARCH FUND: Please donate what you can to help advance knowledge of this 1.100.000 rare neurovascular chronic pain syndrome . We desperately need research!. https://www.paypal.me/EMWarriors
- DONATION LINES http://erythromelalgiawarriors.ning.com/giving-back AND www.paypal.me/EMWarriors
- DOCTORS DATABASE: For doctors familiar with EM , please ask our awesome admin team or email support services at erythromelalgiawarriors@gmail.com stating your country, state/county.
- EM AWARENESS PACK: Email our support services at erythromelalgiawarriors@gmail.com for details.
- THE LITTLE EM WARRIORS CLUB(under 18's): Ask us for details on how your little EM warrior can join and receive their goody bag.
- RESEARCH DATABASE: For articles and research on erythromelalgia and its comorbidities, please email support services at erythromelalgiawarriors@gmail.com
- AWARENESS CAMPAIGNS, EVENTS, FUNDRAISERS, RESEARCH, DISCUSSION TOPICS, ,QUESTION TIME, POLLS, FLASH COMPETITIONS: Ask our admin team, watch for our adverts, check out announcement section, follow our events page or email our support services.
- AWARENESS PRODUCTS : We offer a range of t-shirts, mugs, pens, car magnets and bumper stickers and temporary tattoos . We also have eye-catching erythromelalgia flyers, EM awareness bracelets, medical alert bracelets, badges , rare card to personalise and erythromelalgia fold out brochure. Please ask.
Did you know that all the EM Warriors services and resources are free? .
We rely solely on people's generosity in order to maintain our extensive support network, produce and print awareness as well as educational resources ; sponsor much needed research and advance knowledge of this 1.100.000 rare neurovascular chronic pain syndrome.
Could you fundraise or make a donation to help us? We would be most grateful for any contribution, however small. www.paypal.me/EMWarriors
MEMBERS:
Don’t forget to ask admin or support services about your EM WARRIORS AWARENESS PACK .
Is your EM sufferer under 18 years? Ask us about our LITTLE EM WARRIORS CLUB.
We now have a members EM COMMUNITY PRAYER site: https://www.facebook.com/groups/ErythromelalgiaCommunityPrayer/
