WHO ARE THE ERYTHROMELALGIA (EM) WARRIORS?
The Erythromelalgia Warriors (The EM Warriors) is a dynamic international non-profit organisation dedicated to educating, encouraging and empowering all those living with or affected by erythromelalgia and its comorbidity such as Raynaud’s, small fiber neuropathy etc.
This website is an extension of our volunteer-led support and information network, which provides invaluable free 24-hour online and outreach services worldwide.
- To empower lives touched by erythromelalgia by facilitating the tools for self-advocacy.
- To advance knowledge and raise awareness of erythromelalgia by developing innovative social media campaigns and producing educational resources.
- To develop and distribute erythromelalgia awareness material
- To sponsor research and support independent projects through fundraising.
- A world where there is greater understanding of EM and where the hope of a cure becomes reality.
FOR INFORMATION ABOUT ERYTHROMELALGIA, OUR SERVICES AND RESOURCES:
• SUPPORT SERVICES EMAIL: firstname.lastname@example.org or email@example.com
• WEBSITE: www.emwarriors.org AND erythromelalgiawarriors.ning.com
• SUPPORT CALLS : web.skype.com/en/live:erythromelalgiawarriors Don’t worry if you haven’t got Skype as we also give FB and landline calls. Just contact support services to arrange.
• FACEBOOK: www.facebook.com/ErythromelalgiaWarriors/
• TWITTER: www.twitter.com/EM_Warriors
• COMMUNITY CHAT (private interactive FB group): https://www.facebook.com/groups/ErythromelalgiaCommunityChat/
- COMMUNITY ART AND CRAFTS ( private FB group) https://www.facebook.com/groups/ErythromelalgiaCommunityCrafts/
- COMMUNITY PARENTS and CHILDREN WITH EM https://www.facebook.com/groups/ErythromelalgiaWarriorsCommunityParentsandChildren/
- COMMUNITY PRAYER https://www.facebook.com/groups/ErythromelalgiaCommunityPrayer/
- NETWORK/OUTREACH - Prefer to stay offline? We offer Skype and phone support plus a postal service for information requests.
- STOP THE BURN RESEARCH FUND and AWARENESS PROJECT FUND:
Please donate what you can to help advance knowledge and raise awareness of this 3.100,000 rare neurovascular chronic pain syndrome . We desperately need research!.
- DONATION LINES http://erythromelalgiawarriors.ning.com/giving-back and www.paypal.me/EMWarriors
- DOCTORS DATABASE: For doctors familiar with EM , please ask our awesome admin team or email support services at firstname.lastname@example.org stating your country, state/county.
- EM AWARENESS PACK: Email our support services at email@example.com for details.
- THE LITTLE EM WARRIORS CLUB (under 18's): Ask us for details on how your little EM warrior can join and receive their goody bag.
- RESEARCH DATABASE: For articles and research on erythromelalgia and comorbidities, please email support services at firstname.lastname@example.org
- AWARENESS CAMPAIGNS, EVENTS, FUNDRAISERS, RESEARCH, POLLS, FLASH COMPETITIONS: Ask our admin team , check out announcements section on our different platforms, follow our events pages or message or email our support services.
- AWARENESS PRODUCTS : We offer a range of t-shirts, mugs, pens, car magnets and bumper stickers and temporary tattoos . We also have eye-catching erythromelalgia flyers, EM awareness bracelets, medical alert bracelets, badges , rare card to personalise and erythromelalgia fold out brochure. Please ask.
- YOU TUBE: http://www.youtube.com/channel/UC2wEr_UQxZkwcCewSl5t3CA Look for The Erythromelalgia Warriors
- PINTEREST: pinterest co uk /erythromelalgia
- THE MIGHTY: https://themighty.com/partner/emwarriors/
- SNAPCHAT: https://www.snapchat.com Add our Snapcode below em-warriors
Did you know that our services and resources are free?
We rely solely on people's generosity in order to maintain our extensive support network, produce, print and distribute awareness as well as educational resources; sponsor much needed research and advance knowledge of this 3:100,000 rare neurovascular chronic pain syndrome.
Could you fundraise or make a donation to help us? We would be most grateful for any contribution, however small. www.paypal.me/EMWarriors and http://erythromelalgiawarriors.ning.com/giving-back
WE MONITOR OUR WEBSITE COMMUNITY AND TAKE THE WELFARE OF OUR MEMBERS VERY SERIOUSLY INDEED.